Charlie Gard

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Judge rules to withdraw life support from sick baby

Post  Freedom on Wed 12 Apr 2017, 11:52 am

https://www.theguardian.com/society/2017/apr/12/parents-fighting-keep-sick-baby-alive-charlie-gard-appeal

What a tragic story.
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Charlie Gard

Post  bluebell on Fri 30 Jun 2017, 5:05 pm

I have been so moved by this.   I so hope they can take Charlie home for his last hours.   Just sending love and strength to his parents and little tiny Charlie.   Is there a God ?

http://www.bbc.co.uk/news/uk-england-london-40462831

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Re: Charlie Gard

Post  Freedom on Fri 30 Jun 2017, 6:21 pm

It does seem strange to me that the parents are being denied the chance to take him to America; they have the money to do so - surely they should be allowed to have their wish.
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Re: Charlie Gard

Post  Mimi on Fri 30 Jun 2017, 7:04 pm

Freedom wrote:It does seem strange to me that the parents are being denied the chance to take him to America; they have the money to do so - surely they should be allowed to have their wish.

I agree.

The Courts believe he is in pain but how do they know that ? He looks very peaceful in the photo.

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Re: Charlie Gard

Post  Freedom on Wed 05 Jul 2017, 10:47 am

What truth there is here I don't know as the report originated in The Sun.

http://www.independent.co.uk/news/world/americas/charlie-gard-donald-trump-tweet-us-hospital-offers-free-treatment-terminally-ill-baby-president-a7822721.html
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Re: Charlie Gard

Post  bluebell on Fri 07 Jul 2017, 6:09 pm

Is there hope yet?   Untested experimental treatment that may help.


http://www.bbc.co.uk/news/uk-england-london-40535043

Charlie Gard: Great Ormond Street Hospital applies for new hearing

Charlie Gard has been in intensive care since October

Great Ormond Street Hospital (GOSH) has applied for a fresh hearing in the case of Charlie Gard following claims of "new evidence relating to potential treatment for his condition".

Seven medical experts wrote a letter to the hospital suggesting unpublished data could help cure the 11-month-old's brain damage.

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Re: Charlie Gard

Post  Nuala on Sat 08 Jul 2017, 5:13 pm

Remember this little boy?

http://www.bbc.co.uk/news/uk-england-32013634

All the parents wanted was to try a treatment abroad to try and give their little boy a chance.

They were arrested and held in prison.

The little boy had his treatment and is now in remission it seems.

The doctors in UK should hang their heads in shame, if they had their way he would have died.

And note this, you think your children belong to you, they don't, they belong to the state, as we've seen in these cases.
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Re: Charlie Gard

Post  Freedom on Sat 08 Jul 2017, 5:19 pm

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Re: Charlie Gard

Post  Freedom on Mon 24 Jul 2017, 9:37 pm

Very sad.

http://www.dailymail.co.uk/news/article-4723092/Charlie-Gard-s-fate-decided-TODAY.html
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Re: Charlie Gard

Post  poster on Mon 24 Jul 2017, 10:23 pm

I don't know about this disease and this case but I can speak from personal experience that doctors do not always know best and sometimes miracles can happen.

I have a sibling who was diagnosed with a fast-growing brain tumour as a young child. She was starting to lose balance, not eating, losing weight and her eye-sight was starting to be affected. My parents saw the 'top' brain surgeon in the country at the time. An arrogant little sh** as it happens. He was very cavalier, announced that surgery carried a 50% chance of the child dying. And he didn't want her dying at his hands.  But agreed that without surgery it would be a slow and painful end with a fast growing tumour which would affect all bodily functions eventually leading to death. His advice, in short was: 'let her die and have other children'.

My parents refused to accept this and used the contacts they had to source out someone 'in the world' who might be prepared to try to operate on the tumour and give my sister a chance of life.

In the end, through Scandinavian contacts, they found a top brain honcho in Sweden, then at the forefront of brain surgery world-wide or so I am told. He was prepared to operate but made my parents accept that there was a 50% chance of death on the operating table.

A 50% chance of death is better than a 100% chance of death especially when you consider that death is 100% not living.

So off my mother went to Sweden and hours of surgery for my sister. Then days and weeks of recovery. And guess what? She recovered 100% and is alive and well today.

If they had listened to the top brain surgeon in the UK at the time she would have died at the age of four or five. Now in her 50s and fit as a fiddle.

It may be that the illness this poor baby has is, indeed, incurable, but isn't EVERY life worth fighting for?

ETA: After my mother and sister returned to the UK, my parents wrote to the UK consultant who had written her off, they were still very angry at the way he had been so cavalier with them. His reply was: "I am glad you are pleased with the outcome."

This was in the days before chemo when surgery was really the only option for fast-growing tumours.
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Re: Charlie Gard

Post  mumof6 on Mon 24 Jul 2017, 10:58 pm

I had a 45 minute argument with a registrar when I was pregnant with one of my children.

To paint the scene: I had just miscarried twice, and had already lost one of the pair of twins I had conceived, so was still pregnant with the surviving twin. I also do not believe that abortion would ever work for me, I bond with my baby when it is still a ball of cells, I already know that this baby will be absolutely perfect, the usual.

I got 45 minutes of "persuasion" for refusing to have the tests for Downs and spina bifida. Not the scans, I had those, just the blood test, followed by the amnio. When I say "persuasion" I was being called selfish, and told that I had no right to refuse these tests, they were needed for healthy babies.

It was one of the worst experiences of my life, to have a doctor telling me what an awful human being I was to refuse her the right to check my baby.

I can honestly say that I would not have minded had my baby had Downs, I just wanted that baby to live! As it was, she was born perfect. She is still perfect, but society has labelled her autistic. To me, she is wonderful, just the way she is.
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Re: Charlie Gard

Post  purple ronnie on Mon 24 Jul 2017, 11:21 pm

This is a heartbreaking case and I hope baby Charlie goes very peacefully to his fluffy cloud. Crying or Very sad
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Re: Charlie Gard

Post  PMR on Tue 25 Jul 2017, 8:02 am

Mimi wrote:
Freedom wrote:It does seem strange to me that the parents are being denied the chance to take him to America; they have the money to do so - surely they should be allowed to have their wish.

I agree.

The Courts believe he is in pain but how do they know that ?  He looks very peaceful in the photo.
The poor child's physical condition was so bad he couldn't actually show signs of being in pain. There are indications of pain that medical professionals can use such as vital signs. EEG tracings etc
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Re: Charlie Gard

Post  Freedom on Tue 25 Jul 2017, 10:33 pm

A statement from GOSH.

http://www.gosh.nhs.uk/news/latest-press-releases/gosh-position-statement-issued-high-court-24-july-2017
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Re: Charlie Gard

Post  Mimi on Wed 26 Jul 2017, 9:40 pm

Why are the parents wanting to move him. All this talk about taking him home, then taking him to a hospice - why can`t he just be left in peace to die where he is - surely he won`t know whether he`s at home, in a hospice or in the room he`s in right now with the doctors and nurses continuing with his care - or don`t they do palliative care? Poor mite.

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Re: Charlie Gard

Post  Mo on Wed 26 Jul 2017, 10:09 pm

I agree Mimi they should leave him where he is. As well as a specialist consultant they also need specialist nurses (not Hospice nurses) because of his feeding tubes etc. I do feel that the Judge is at the end of his tether with this, it should have been sorted with the consultants and the family. I don't know why the little boy's parents are fighting it. I don't think the ending of this little babies life is going to be pleasant - they should leave it to the experts.
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Re: Charlie Gard

Post  mumof6 on Wed 26 Jul 2017, 10:49 pm

If the poor child were a well loved family pet, he would never have had to endure all this medical treatment, his life would have been ended gently and lovingly.

I sometimes think we treat our pets better than people.
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Re: Charlie Gard

Post  candyfloss on Fri 28 Jul 2017, 6:33 pm

Breaking.......Very sad news Charlie has died in a hospice after his life support was withdrawn Crying or Very sad

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Re: Charlie Gard

Post  Freedom on Fri 28 Jul 2017, 6:36 pm

It sounds as if the end came very quickly then, let's hope that it was peaceful.
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Re: Charlie Gard

Post  candyfloss on Fri 28 Jul 2017, 6:51 pm

'Beautiful boy' Charlie Gard dies






6 minutes ago

 
 



Charlie had encephalomyopathic mitochondrial DNA depletion syndrome

Charlie Gard, the baby at the centre of a legal row over his treatment, has died, a family spokesman has confirmed.

The 11-month-old was moved to a hospice following a High Court ruling.

He suffered from an extremely rare genetic condition causing progressive brain damage and muscle weakness.

His parents, Connie Yates and Chris Gard, fought a lengthy legal battle with Great Ormond Street Hospital to allow him to be taken to the US for legal treatment.

But on Monday they dropped their legal battle after the doctor said it was too late for it to work.




In a statement issued on Friday evening, Ms Yates said: "Our beautiful little boy has gone, we are so proud of you Charlie."

 
Chris Gard and Connie Yates fought a five-month legal battle on behalf of their son

Timeline of Charlie's case
◾3 March 2017: Mr Justice Francis starts to analyse the case at a hearing in the family division of the High Court in London
◾11 April: He says doctors can stop providing life-support treatment
◾3 May: Charlie's parents ask Court of Appeal judges to consider the case
◾23 May: Three Court of Appeal judges analyse the case
◾25 May: The Court of Appeal judges dismiss the couple's appeal
◾8 June: Charlie's parents lose their fight in the Supreme Court
◾20 June: Judges in the European Court of Human Rights start to analyse the case, after lawyers representing Charlie's parents make written submissions
◾27 June: Judges in the European Court of Human Rights refuse to intervene
◾3 July: The Pope and US President Donald Trump offer to intervene
◾4 July: The Vatican's children's hospital in Rome offers to take in Charlie
◾7 July: Great Ormond Street Hospital applies for a fresh hearing at the High Court
◾10 July: Charlie's parents return to the High Court and ask Mr Justice Francis to carry out a fresh analysis of the case. Mr Justice Francis says he will consider any new evidence.
◾17 July: Dr Michio Hirano, the US neurologist, travels to London to examine Charlie
◾21 July: Lawyer representing Great Ormond Street says Charlie's new scan makes for "sad reading"
◾22 July: Great Ormond Street says doctors and nurses have been subjected to abuse and received threatening messages
◾24 July: Charlie's parents say they will end their legal fight for his treatment and let him die
◾26 July: Deadline set for Charlie's parents and Great Ormond Street Hospital to agree how and when he will die
◾27 July: Mr Justice Francis rules Charlie will be moved to a hospice and have his life support withdrawn "soon after" after an agreement to decide his end-of-life care was not reached.

http://www.bbc.co.uk/news/uk-england-london-40752120

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Re: Charlie Gard

Post  Heisenburg on Sat 29 Jul 2017, 9:07 am

candyfloss wrote:Breaking.......Very sad news Charlie has died in a hospice after his life support was withdrawn Crying or Very sad

In all reality the babe was probably dead well before, save for a machine.
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Re: Charlie Gard

Post  mumof6 on Sat 29 Jul 2017, 9:19 am

I am relieved.

I cannot imagine anything worse than being utterly unable to move, or make a noise, unable to see or hear, but still able to feel pain. That, to me, is utterly the worst thing that could ever happen to anyone.

I don't understand why the poor baby was ever put on a ventilator, surely that was never in his best interest, he was never going to get better.
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Re: Charlie Gard

Post  TheTruthWillOut on Mon 31 Jul 2017, 10:14 pm

Very sad case Crying or Very sad  and one difficult to discuss with others that only read tabloids or even watched the news. This article gives a very good overview of the case and debunks a lot myths (especially coming from US politicians)

https://reaction.life/charlie-gard-facts/

There are no winners in a case like this but truly believe the judgement was correct.

Duplicate posts deleted as requested.
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